Cheers to the new beginnings

Hellõõu homies!

Jälle pikem paus jäänud, aga seekord pole see ausalt minu viga (võib-olla hästi natukene on, aga oh well…) – me saime Internetiühenduse alles EILE hommikul. KAKS kuud peale uute korterisse kolimist. Suht sarnane juhus mööbliga, mille saime kätte täpselt üks kuu hiljem. Hästi mõnus oli põrandal magada kuu aega, haha. Sellised asjad võtavad ikka megakaua Austraalias aega, aga see on tegelikult totaalselt teise ja hästi pika postituse vääriline…

Aga okei, aitab virisemisest. Peamine põhjus miks ma täna kirjutan on palju olulisem. Lõpuks ometi sain viimaste skännide tulemused teada täna pealelõunal. Skännide tulemused olid väga head – mass mu rinnakus ja selle metaboolne aktiivus on veelgi rohkem vähenenud. Ravi alguses oli metaboolne aktiivsus (SUV) 22.4, praeguseks hetkeks on see ainult 1.8. Iga number alla 5 on suurepärane. Nagu ma eelnevalt maininud olen, siis esmase mediastiinse B-raku lümfoomi puhul on tavaline, et ravi lõpus (ja tihti igavesti) jääb järele veidikene surnud rakk-kudet. Lisaks, on tavaline, et antud kude näitab aktiivsust – see on lihtsalt paistetus, mis aja jooksul (mõnikord kuni aasta hiljem) ära kaob. Arsti sõnul on tõenäosus selle vähitüübi tagasitulekuks väga väga minimaalne, kõvasti alla 10%. Seega hetkel on kõik suurepärane – saan oma elu LÕPUKS normaalselt edasi elada, jee! Nii, et õnnitlused ja head soovid on täiega oodatud, haha. Need, kes minuga ravi ajal suhelda ei julgenud miskipärast, MARIT IS BACK.

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Kuigi pean PET uuringutel ja arsti juures käima iga 3 kuu tagant esimesed 2a, peale seda iga  6 kuu tagant järnevad 3a ja peale seda kord aastas kuni … igavesti. Ütles, et tahab mul silma peal hoida, mitte vähi tagasituleku (selle vähitüübi puhul tagasitulek juhtub ainult esimese 2a jooksul, kui üldse…), vaid keemiaravi pikemaajaliste kõrvalmõjude pärast. Kuna ma olen nii noor ja talusin keemiaravi väga hästi, seega ehk õnnestub neist eemale hoida! Port võetakse samuti mu rinnakust peale järgmist PET uuringut välja, jess!

Üleüldiselt on elu viimasest postitusest saadik suhteliselt tavapärane olnud. Tunnen end hästi, energia on taastunud ja enam keset päeva magama ei pea. Vabalt käin jalutamas ja olen terve päeva aktiivne. Uuest nädalast alustan sportimisega ka, lõpuks. Arvan, et nüüdseks on hea aeg, kaks kuud ravi lõpust ju möödas, aga samas kiiret pole kuhugi. Baby-steps…

Paar nädalat tagasi alustasin praktikaga, et oma noorsootöö sertifikaat ära lõpetada. Praktika on umbestäpselt 8 nädalat pikk ühes kohalikus noorte pagulastega tegelevas organisatsioonis. Siiamaani on kõik väga huvitav ja vahva olnud, aga õppida on palju. Loodan, et peale praktika lõppu saan lõpuks tavapärasele täiskasvanule omaselt PÄRIS tööl ka käima hakata. Olen juba kandideerinud ja mõnel intervjuul käinud, aga nagu ma mainisin – asjad liiguvad siin ikka vääääga aeglaselt!

ISSAND ja peaaegu unustasin – ma olen nüüd EMA – meie kiisupoiss, Marx, liitus meiega paar nädalat tagasi. Ta on ikka super armas ja mega tubli, enamus aega. Mõnikord on ikka marakratt küll, aga noh. Kiisupoja ju.

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Aga ok, aeg tähistamiseks!

Suur aitäh veelkord mulle toeks olemast, nii armsad olete!

 


 

Hola amigos!

It’s been a while again, but it’s not really my fault (or maybe it is…) but we only got Internet at home YESTERDAY. Pretty much 2 months after we moved in. And only received all the furniture ONE MONTH after moving in…it was such a joy to sleep on the floor for a MONTH. Things tend to happen very slowly in Australia … but it’s nice to be back in civilisation! And now I’ve ran out of excuses for not blogging …

Of course, if you guys remember (and probably expect…) I was supposed to make a blogpost after I’ve received my post-treatment scan results. So today is the day – I’ve seen my haematologist and the results have arrived! I had both PET and CT scans last Monday (23 January) and according to the scans, I’m doing really well and the scan results were perfect. The mass in my chest and its metabolic activity has further reduced since the PET scan at the end of October, woo hoo! In June, I started with metabolic activity (SUV) of 22.4, now it’s only 1.8. As I’ve mentioned earlier, some residual (scar) tissue left after treatment is normal with this type of lymphoma and same thing with the metabolic activity, which is most likely caused by inflammation/thymic rebound and can stick around for up to 12 months! AND – haematologist also mentioned that the chances for reoccurrence are VERY low. I asked her about the percentage and she said – single digits! So nothing to worry about – chemotherapy was successful and F Y cancer! This is the beginning of my new life, finally. So feel free to congratulate me. Just sayin’.

bye-bitch-bye

Now I just have to go for PET scans and haematologist visits every 3 months for 2 years, every 6 months for year 3-4 and once a year after that until..forever. So the next visit is on for the beginning of May. Though, with primary mediastinal B-cell lymphoma, reoccurrence is only likely within the first 2 years – after that it RARELY happens – she still wants to keep an eye on me, not for the cancer itself, but more for the long-term side effects of chemotherapy. That’s fine though, better to be checked every once in a while anyway, doesn’t hurt. Plus, the port in my chest will be removed after my next visit in May, yay!

Otherwise, life has been pretty uneventful since my last blogpost though, I think. I been feeling pretty well and getting better and better each day. To be honest, I feel like I’ve returned to my previous energy levels (post-diagnosis/getting sick) – I don’t feel sleepy during the days anymore and I’m actually able to do things. Hence, I think it’s also time to return to working out, etc. Though I mentioned in my previous post(s) that I plan to start running, after some research and discussions with fellow cancer survivors, it’s best to start slooowly – so I’ve decided to join with a local gym and have a few personal training sessions where she/he can create an individual plan for me. So ready to take the most out of my life now. It’s not like I didn’t do it before, but now definitely even more. Every single day is so important!

I’ve also started my work placement at a local organisation working with recently resettled refugee youth to finish my Youth Work Certificate – so far, so good! Will do the work placement until mid-March and after that (hopefully) will find a proper job and be a grown up once again 😉

AND OH MY GOD – almost forgot. I’m a mum now – a couple of weeks ago we were finally able to pick up our feline baby boy, Marx. He is such a sweet boy – most of the time. Sometimes he can be a bit of pain in the ass, but that’s also fine, what else can you expect from a baby anyway, huh?!

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Nunnu, eksju!? / My sweet boy!

NOW IT’S TIME TO CELEBRATE!
Thanks for your never-ending support,

Xoxo

 

 

 

 

 

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