Port-a-cath and bush walks

Kui mäletate, siis paar nädalat tagasi kirjutasin (virisesin?) kuidas keemiaravi õde mu PICC liini puhastades välja tõmbas ja, et pean seetõttu uue liini panema. Selle nädala alguses kohtusin oma hematoloogiga, kes otsustas, et parem idee oleks PICC liini asemel panna veeniport, mis vajab vähem hooldust ja seetõttu on väiksem risk, et sellega miskit juhtuma peaks (kellegi rumaluse tõttu?!). Port on pisikene “masin,” mille küljest läheb juhe südameveeni ja mis on paigaldatud rinna peale naha alla ja millele pääseb ligi spetsiaalse nõelaga, mis torgatakse läbi naha selle masina sisse (imelik kirjeldus, seega lisan pildi). Läbi selle nõela saab “süstida” keemiaravimeid ja vajadusel võtta verd. Pordi eluiga on ligikaudu 8 aastat. Ja selle olemasolek ei mõjuta mu elukvaliteeti negatiivselt mitte kuidagi – saan ujuda, dušši all käia, sporti teha jne. PICC liiniga ei olnud ükski neist võimalik. Seega miskit positiivset ka selles “saagas.”

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Veenipordi asukoht naha all / This is where port is located under the skin

Järgmisel hommikul sain haiglast telefonikõne, et reede pealelõunaks on operatsiooni-protseduri aeg broneeritud. Jänku nagu ma olen, siis terve nädala närveldasin, mitte protseduuri enda, vaid kanüüli paigaldamise pärast. Ma ei ole vist maininud, aga ma hullult kardan kanüüle, mis pannakse käelabasse. Mul pole mingit probleemi kanüülidega, mis pannakse ülakätte, aga käelabasse. Oh jumal, kui valus ja õudne. Samas, ega protseduur ise ka väga glamuurne ei ole. Enne protseduuri algust tuli arst minu juurde ja seletas täpselt, mis ta tegema hakkab. Päris kole kui aus olla. Kirjutan teile ka, siis saate veidi ette kujutada seda koledust, mis ma tundma pidin. Arst selgitas, et alguses tehakse pisikene 5mm sisselõige kaela, mille kaudu pannakse see toru kägiveeni (sealt läheb veri otse südamesse) ja peale seda 5cm sisselõige (“tasku”) rinna peale, kuhu pannakse port. Peale seda ühendatakse need kaks ja sulgetakse haav õmblustega. Nii õudne oli kuulata ja ettekujutada seda…seega kui anesteesiaõde küsis kui ärkvel ma protseduuri ajal olla tahan, siis ütlesin, et üldse ei taha. Järgmisel hetkel oli mul kanüül käelabas (ai-ai-ai!) ja viimane asi mis ärkvelolekust mäletan on tema sõnad, et “nüüd kohekohe tunned nagu oleksid hästi palju gini ja toonikut joonud.” Järgmisel hetkel avasin silmad tund hiljem taastumispalatis. Nii tore! … kuni kojujõudmiseni, mil avastasin, et side (plaaster?) oli verest läbiimbunud ja sõit haigla EMOsse võis alata, reede õhtul, jällegi. Istusime seal 5.5 tundi kuni haav rinnakul oli puhastatud ja side vahetatud (mis võttis muidugi ainult marginaalsed 15 minutit). Koju jõudsime alles kell 4 hommikul.

Jättes kõrvale selle protseduuri, on viimased paar nädalad olnud suhteliselt mõnusad. Enesetunne on täitsa OK ja olen olnud suhteliselt aktiivne. Koolitöö läheb edukalt (3 ainet 19st sooritatud) ja praktika jaoks olen ka suhteliselt palju teinud. Lisaks olen palju jalutamas käinud – peamiselt seetõttu, et ilm läheb iga päevaga aina ilusamaks ja soojemaks. Ahjaa, postituse kirjutamise hetkel istun tegelikult õues ja püüan esimesi kevadsooje päikesekiiri. Mmm, nii mõnus!

Vastuoluliselt paljude arvamusele, Austraalia on talvel suhteliselt külm (oleneb asukohast muidugi). Näiteks Sydneys on talveöödel suhteliselt jahe, kraadid võivad kukkuda kuni 0ni. Praeguseks hetkeks on muidugi juba soojem, päeval tõusevad temperatuurid kuni 25ni ja pole kaugel aeg kui saab minna randa peesitama. Sydney on ju teadatuntud oma kaunite randade poolest. Luban, et kui õige aeg käes, siis näitan pilte  siinsetest ilusatest randadest (ja loodusest).

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Esimesed soojad kevadpäevad / First sunny and warm spring days

Aga senimaani nautige paari pilti meie paaripäevatagusest jalutuskäigust. Pildid on tehtud minu kalli elukaaslase poolt, kes on kaameraga 100x parem kui mina…

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Hello little friend!

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Elukaaslase (vanemate) koera jalutades / My boyfriend’s (parents) dog walking with us

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Lorikeet

Juba homme alustan keemiaravi 4nda tsükliga (nii ruttu!), seega ilmselt olen veidi aega talveunes jälle. Luban, et teen postituse nii kiiresti kui võimalik peale ärkveletulekut.

Aga tegelikult hetkel lähen ja naudin viimaseid nädalavahetusetunde kinos Jason Bourne uut filmi vaadates.

Tsaupläu ja “head ööd”!


Do you remember couple of weeks ago I was complaining how my PICC line was pulled out by a nurse and I have to get another one inserted? Well anyway, after meeting with my haematologist earlier this week, she decided that perhaps I should get port-a-cath (short: port) instead and had an 1 hour appointment (surgery) booked for the insertion for Friday. It is a device with a tube going into your heart vein, which is inserted on your chest, under your skin, and can be later accessed by a special needle through which they can run chemotherapy drugs and can take blood, when necessary (picture in the Estonian language part of the post). As it is under your skin, no special care needs to be taken (only simple heparin flush every 4 weeks when not used) and there is a very low risk for infection (unlike with port that needed to be cleaned/dressing changed once a week) and it can stay in there for up to 8 years. Also, as port is under the skin, it won’t affect the quality of life in a negative way at all – I can swim, take a shower and work out as much as like…with PICC line, none of it was possible. So there are some positives in all this trouble…

For the rest of the week I was so terrified and was complaining to my boyfriend how scared I am of the procedure (after reading horror stories from the interwebz, of course). Why you might ask? Well, although, during the process a person is sedated (meaning awake but very relaxed) and gets local anaesthetic, so it is not too bad, but I AM SO TERRIFIED of cannulas put in my HAND. So so so scared. I don’t mind cannulas in my ARM..but in my hand. Oh my god. Don’t get me started… so horrified. Anyway, never mind the complaining…Friday afternoon still came… before the procedure, doctor explained in DETAIL how the process will take place and it sounded … pretty gross. I give you some details just to gross you out a bit and give nightmares (or maybe inform in case you are not aware, pretty sure most are not). Anyway in simple words, first they made a small incision (5mm) on my neck to put a tube to jugular vein, and then another incision (5cm) on my chest through which they put the port in..and then connected these two. And then stitched me up. For me, like I said, it sounded too gross so I decided that I want to be sedated as much as possible for the whole duration of the procedure. Luckily enough, the anaesthetic nurse asked how much I want to be asleep? I said A LOT. Then this horrible cannula insertion in my hand happened and which I luckily survived… AND then he said “alright,” and “now it feels like you had a lot of gin and tonic” and the next thing I remember I woke up in the recovery room one hour later.

Wippii, it was seriously a whole less worse than I expected… or that’s what I thought at first..or until I got home and discovered that the dressing was soaked in blood. Short call to the Emergency Room (as it was already 8pm) and then 40min drive to the hospital. AGAIN Friday night in the ER. Busy busy busy. Had to sit there for 5.5 hours for a 15min clean up and a dressing change. Luckily enough, everything is good now. Just a little bit pain when getting up from a bed/chair, but should be all healed in couple of weeks.

Besides of this “adventure” the weeks since my last chemo session(s) have been pretty relaxed and enjoyable. The weather in Sydney is sloooowly warming up (~20-25 degrees during the day) and summer is not that far anymore (or actually still another 3 months). Some might or might not know but winter in Australia can be pretty damn cold (especially in south). During the winter, temperatures can go as low as 0 degrees during the night. Actually, I am sitting outside and enjoying the sun rays whilst writing this blogpost (picture in the Estonian language part of the post). So nice! Can’t wait for summer. As you all probably expect – summer in Australia is pretty amazing. Especially around Sydney with all the nice beaches you’ve all heard about.

Also, we have been taking some nice bush walks in the past couple of weeks and my boyfriend made some nice pictures that I don’t mind sharing with you. He is so much better with camera than I am… Scroll back up and see the nice pictures yourself!

Already tomorrow I am starting the 4th cycle of chemotherapy (so fast!) and as I am probably not awake that much next week, won’t be making a new post for a while. So don’t you guys worry, I will update you about new developments as soon as I’m out from hibernation. But for now, I’ll enjoy what’s left of this weekend at the cinema by watching the new Jason Bourne movie.

Laters babies,

Xoxo

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