First day of chemotherapy

Lõpuks ometi on keemiaravi esimese tsükli esimene päev saabunud! ~6.5 nädalat sellest päevast kui esmakordselt Kambodžas arsti juures käisin ja ~2 nädalat vähidiagnoosist Austraalias -pole paha!

Kuigi lubasin, et teen miskit eriti vinget nädalavahetusel, siis tegelikult kulges ikkagi suhteliselt tavapäraselt. Laupäeval olid Austraalias valimised (mis siinmail on kodanikele kohustuslik!), seega elukaaslane pidi end valimisjaoskonda vedama…pühapäeval käisime mõnusal brunchil kohalikus kohvikus ja pealelõunal 7.5km jalutuskäigul lähedalasuval matkarajal. Nagu eelnevalt mainisin, loodus on siinkandis ilus ja õhk värske. Iga päev ikka imestan kui mõnus Austraalias olla on võrreldes Kambodžaga (pealinnas Phnom Penhis), kus loodusest pole juttugi ja õhuvärskust annab tikutulega taga otsida. Tegelikult peakski millalgil oma 10st kuust seal elades postituse koos paari pildiga tegema, võib täitsa huvitav lugeda olla, eks?!

Aga olgu, postituse kirjutamist alustades istusin vähikliinikus ja olin selleks hetkeks seal olnud juba 6 tundi. Suhteliselt mugav tool + TV kusjuures, krhm. Tere arenenud maa.


Esimesel korral võtab ääretult kaua aega, kuna Rituximab‘i – täna õppisin, et pole otseselt keemiaravi vaid immuunravi – võivad esmasel manustamisel tulla suht koledad kõrvalmõjud (gripilaadsed sümptomid jne esimese tunni jooksul). Et kõrvalmõjusid ära hoida nii palju kui võimalik pidin enne ravi alustamist võtma topsitäie tablette (nt.palaviku- ja iiveldusvastane), aga oht oli ikka. Seega tavaliselt tilgub ravim üliaeglaselt kuni 6-7 tundi, olenevalt patsiendi taluvusest. Mul mingeid kõrvalmõjusid ei esinenud – sai ainult 3.5-4 tunniga tilgutud!

Tänasest alates sain endale masina (pumba? Teeb nii jubedat häält iga minut, varsti viskan vastu seina!) külge, mis aaaaeglaselt tilgutab 3 keemia kokteili (Doxirubicin, Etoposide ja Vincristine) mulle veeni järgnevad 96 tundi. Pilti kah, kullisilmaga on seda toru näha mille kaudu keemia käe kaudu verre läheb. Kannan seda masinat järgnevad päevad endaga iga hetk kaasas puusakotis nagu turist. Keemia ise on erkpunast värvi ja lubati punast pissit järgnevateks päevadeks, haha!

Antud kokteilil on palju erinevaid kõrvalmõjusid, aga peamiselt iiveldus, väsimus ja karvakaotus (põhimõtteliselt igaltpoolt, kus karvu kasvab. ei mingit jalgade rašeerimist järgnevad kuud, woop woop) – eggmode here I come!

Keemiale lisaks sain kotitäie tablette, mida pean tsükli jooksul võtma. Nt. 2 tüüpi antibiootikume, 2 tüüpi iiveldusrohtu ja 5 päeva jooksul 40 tabletti Prednisolon’i (steroidi). 6ndast päevast alates lisaks valgeid vereliblesid kasvatavat süsti igapäevaselt kuni hematoloog ütleb stopp!

Kogu kupatus:


Paljudele üllatuseks, seda tüüpi keemiaraviga kaalu ei kaota (nagu Ameerikamaa filmides tihti juhtub), vaid pigem tuleb juurde steroidide õgimise tõttu(oranžis purgikeses). Et kaalu stabiilsena hoida ostsin köögikaalu, et oma igat ampsu mõõta (ja õgimishooge vältida – liiga laisk, et mõõta, aga uus reegel täna hommikust, et mida ei mõõda seda suhu ei pane!) Samas hulluks ka ei lähe, iga laupäev on patupäev.

Pilti eilsest jalutuskäigust ka!:

Aga olgu, siiamaani on kõik tore ja ilus – kõrvaltoimete vaba, aga eks näis, mis juttu ma mõne päeva pärast räägin! Ilmselt järgnevat –  mugandades meie kalli Lennart Meri tsitaati – “Olukord on sitt, aga see on minu tuleviku väetis.”

Kallipai ja tänud kaasa elamast!

Finally the first day of the first cycle of chemotherapy has started, wuuhuu! ~6 weeks since my first visit to a doctor in Cambodia and only ~2 weeks since my cancer diagnosis in Australia, not bad.

Although I promised that I’ll do something extremely fun weekend, it still ended to be pretty usual. On Saturday, it was an election day in Australia (compulsory to all citizens), thus my boyfriend also had to go and cast a vote… on Sunday we had a nice brunch in nearby nursery-cafe, yummoh and in the afternoon went for a nice 7.5km bushwalk (picture of our walk up there somewhere!). I’ve mentioned earlier, there is so much greenery and loads of fresh air . It was kind of unheard of having any greenery or any fresh air whatsoever in Cambodia (in Phnom Penh at least), so it is a nice change and a good environment to get healthy again. Perhaps I will make a post about my 10 months in Cambodia and add some nice pictures also. Could be interesting to some, huh?!

I started writing this post while being at the Cancer Clinic and had been there already for 6 hours. It takes awfully long during the first treatment and all the other prep-work. Mainly because of the drug Rituximab – learned today it is more like immunetherapy rather than chemotherapy – can have nasty side effects during the first session (e.g. flu-like symptoms). To avoid them, I took bunch of tablets prior starting (anti-flu and anti-nausea), but the risk remained. Thus during first session it normally drips sloooowly for 6-7 hours. Luckily I did not have any side effects and it was finished in 3.5-4 hours! Today I also started a three-chemo drug cocktail (Doxirubicin, Etoposide and Vincristine) for the next 96 hours – it will be administered through a pump I will carry in a bag on my hip! Look at the picture in the Estonian language part of the post, with an eagle eye you can see the thin tube that goes from the machine under the cover on my arm – and through there from PICC line to my chest. Combo itself is bright red and the nurse promised I will get some red pee in the coming days, how exciting. Won’t post picture of it I promise.. although very tempting…AND the machine makes such annoying sound every minute.. already feel like I want to throw it against the wall, haha!

This drug combo has three main side effects: nausea, fatigue and hair loss (I mean everywhere on my body. EVERYWHERE. Even all my chest hair.. how devastating, kidding. No hair there. Yet.). Thus, I’m considering shaving my head this week already – ultimate egg mode, beware!

In addition to the chemo drug I received a bag full of medications to take during the following 21-day cycle – from anti-nausea drugs to antibiotics (picture up there somewhere!)

Also, as a surprise with this type of chemo – no weightloss will be seen…more likely to gain weight THANKS to the steroids I will be taking. Thus, I bought a kitchen scale to measure every single thing I will be eating in order to maintain weight (not a good thing to lose weight during treatment, although in reality could lose like 20 😀 oh well, in 2017 maybe). And I know with my high level of laziness I probably will just avoid putting all rubbish in my mouth when I know I have to take the extra step to measure it… first world problems.

But OK, so far all is good. I feel scarily well (thank you steroids!), but it is expected not to last for too long. So.. in order to visualise my (future) experience in a positive way I quote (with slight modifications) the most awesome Estonian president of all times, Lennart Meri: “The situation is shit, but it is my future fertilizer.”

Until next time, thank you for your support and ciao!

Xoxo

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